#ENDOs Project: Collecting Stories from People with Endometriosis
Around 190 million people worldwide suffer from endometriosis; in Italy, at least 3 million have been officially diagnosed.
If you have or suspect you have endometriosis, #ENDOs offers you the opportunity to share your story completely anonymously, becoming part of a large community of support and understanding.
What is #ENDOs?
#ENDOs is a project co-funded by the European Union, created to provide a safe space where people from Italy, France and Ireland can share their experience with endometriosis and build a welcoming and supportive community that values each unique story.
The collected narratives will contribute to the creation of an “Emotional Narrative Dictionary,” helping doctors and other professionals better understand endometriosis and improve communication with those who experience this condition
How does it work?
The DNMLab platform, developed by DNM – Digital Narrative Medicine, will guide you through writing your story in a few simple steps while ensuring compliance with EU privacy regulations. You can choose to respond to the proposed prompts or ignore them if you prefer, as well as freely share the aspects of your experience that matter most to you.
Why join #ENDOs?
- To give voice to your story and those of many other people.
- To break the silence surrounding a condition that is still poorly understood and often minimized.
- To help improve communication and relationship with healthcare professionals and the Research community.
Direct access to the platform to start sharing your experience:
Italy: https://dnmlab.it/?customregistration=dkshfksdjf987sejldfs9sfd8sglnkfs
France: https://dnmlabfrance.eu/?customregistration=ljsafjaks375397823rmxfksfhxkjdfh
Ireland:https://dnmlab.eu/?customregistration=v2agqxniqpw0sx63yinnt46uhrl92j1w
For more information, visit the official website: endostories.eu/narrative-pathway