eventi

Workshop “Le narrazioni vestite di tecnologie. Come cambiano le storie e il loro uso nell’era della salute digitale”

Il Centro Nazionale Malattie Rare dell’Istituto Superiore di Sanità e il Center for Digital Health Humanities, in collaborazione con Istituti Fisioterapici Ospitalieri, organizzano il Workshop “Le narrazioni vestite di tecnologie. Come cambiano le storie e il loro uso nell’era della salute digitale” (1 febbraio 2018, Istituto Superiore di Sanità, Roma).

La giornata di lavoro intende esplorare la relazione tra narrazioni e nuove tecnologie.
La medicina narrativa (narrative based medicine) può favorire l’empowerment dei cittadini, inclusi pazienti con malattie rare e loro familiari, professionisti sanitari e socio-sanitari, al fine di tutelare e promuovere la salute pubblica. Al tempo stesso, le nuove tecnologie aprono nuove possibilità e nuovi modelli relazionali.
In passato, le innovazioni tecnologiche hanno offerto a medici ed operatori della salute strumenti sempre più sofisticati e accurati. L’impatto della rivoluzione digitale attuale è diverso: la digital health mette a disposizione del singolo un insieme di strumenti di misurazione, direttamente sullo smartphone. In tempo reale, è possibile misurare la glicemia, il battito cardiaco, il respiro e aggregare i dati in grafici sempre accessibili e aggiornati.
Nello stesso tempo, le conversazioni online sulla malattia e le terapie consentono di condividere con altri pazienti le paure, le aspettative, gli effetti dei farmaci.
Tutto questo rende più complessa la scena dell’atto terapeutico e le condizioni della sua efficacia. Insieme misurazioni e narrazioni creano un’esperienza della malattia e delle terapie che nasce e si sviluppa al di fuori del contesto strettamente medico, con rischi ma anche opportunità nuove.
Rischi come una progressiva disintermediazione e delegittimazione della medicina come riferimento di saperi e metodi per la gestione della salute. Opportunità come lo sviluppo di nuovi paradigmi epidemiologici, diagnostici e terapeutici che integrino narrazioni e tecnologie, in un’ottica bio-psico-sociale.

Nel workshop è previsto uno spazio per la presentazione di esperienze che coniughino medicina narrativa e nuove tecnologie.
È prorogato al 25 gennaio 2018 il termine per candidarsi per presentare la propria esperienza al seguente link: https://it.surveymonkey.com/r/call1febbraio18

I posti sono limitati, le iscrizioni sono aperte e termineranno il 28 gennaio 2018.
Per partecipare, è necessario iscriversi al seguente link: https://it.surveymonkey.com/r/iscrizioni1-2-18

Per maggiori informazioni, consultare il programma preliminare in allegato. Per aggiornamenti, visitare il sito www.iss.it/cnmr.

Qui si può scaricare programma preliminare della giornata.

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