Malattie rare al tempo del Covid-19, dall’emergenza alla ripartenza
L’Università di Catania ha lanciato l’indagine “Malattie rare al tempo del Covid-19: dall’emergenza alla ripartenza” per individuare e comprendere gli elementi che possono essere utili per migliorare la qualità della vita delle persone con malattie rare e delle loro famiglie alla luce degli eventi correlati alla pandemia da virus SARS-CoV-2.
L’indagine si avvale di un questionario online che persone con malattie rare o il familiare/caregiver che se ne prende cura, possono auto-compilare anonimamente da qualsiasi device dal 22 luglio al 6 settembre 2020.
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