Al via LIMeNar, progetto dell’ISS per valutare l’utilizzo della Medicina Narrativa

LIMeNar

Al via LIMeNar, progetto dell’Istituto Superiore di Sanità per valutare l’utilizzo della medicina narrativa in ambito clinico-assistenziale e associativo. Aperte due Call for partnership e proposal (proroga deadline: 30.11.2019) Nella governance del progetto anche il Center for Digital Health Humanities, con Cristina Cenci nello Steering Committee, Alessandro Franceschini e Claudia Parrotta nel Management Team.

A distanza di cinque anni dalla pubblicazione delle Linee di indirizzo per l’utilizzo della Medicina Narrativa in ambito clinico-assistenziale, per le malattie rare e cronico-degenerative (2015, ISS, Roma), il Centro Nazionale Malattie Rare dell’Istituto Superiore di Sanità promuove un progetto di ricerca per valutarne l’uso e i contesti applicativi (Strutture sanitarie ed associazioni di pazienti), anche alla luce della trasformazione digitale.

Gli obiettivi del progetto LIMeNar – Uso e contesti applicativi delle linee di indirizzo per l’utilizzo della medicina narrativa in ambito clinico-assistenziale e associativo sono:

– analizzare diffusione, ambiti e risultati dell’applicazione delle Linee di indirizzo sull’uso della Medicina Narrativa in ambito clinico-assistenziale e associativo;

– valutare un possibile aggiornamento del contenuto delle Linee di indirizzo, anche alla luce della trasformazione digitale;

– promuovere la conoscenza delle Linee di indirizzo e di selezionate esperienze e pratiche nell’ambito delle Reti di Riferimento Europee (European Reference Networks – ERN) per le malattie rare.

Il progetto, in continuità con quanto realizzato per le Linee di indirizzo (2015, ISS, Roma) e alla luce del Workshop “Le narrazioni vestite di tecnologie. Come cambiano le storie e il loro uso nell’era della salute digitale” (2018, ISS, Roma), prevede una attenzione specifica per gli aspetti scientifici e comunicativi.

La governance del progetto, articolata in un’ottica inclusiva, vede la partecipazione di molteplici soggetti, tra cui anche il Center for Digital Health Humanities, rispettivamente con Cristina Cenci nello Steering Committee, Alessandro Franceschini e Claudia Parrotta nel Management Team.

In questa prima fase del progetto, sono aperte due Call prorogate fino al 30 novembre 2019:

CALL for PARTNERSHIP: per individuare Società Scientifiche, Ordini professionali e Associazioni che parteciperanno come Collaborating Partners;

CALL for PROPOSAL: per individuare Designer e Società di Comunicazione che realizzeranno “Communication kit” e “Dissemination kit”.

Maggiori dettagli e link per partecipare alle Call sono disponibili sul sito web dedicato.

Per ulteriori informazioni e/o quesiti, contattare medicina.narrativa@iss.it

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